Resources to help you stay on track with EVKEEZA ® (evinacumab-dgnb)
Empowering you with the right support Your myRARE ® Patient Navigator will work closely with you to help you maintain access to EVKEEZA throughout your ongoing journey. They can answer questions, help you overcome logistical challenges related to treatment, and connect you with resources.
EVKEEZA is administered every 4 weeks by your healthcare provider, which means you receive 13 treatments per year. As the months go by, sometimes you can lose track of your treatment schedule. That’s why there are resources that can help.
Call 1-877-EVKEEZA (1-877-385-3392) and select option 1. Support is available Monday through Friday, 9 am to 9 pm ET.
EVKEEZA Digital Companion Schedule app notifications to remind you of infusion appointments.
Staying on top of insurance changes Insurance will periodically require reauthorization. During these situations, myRARE ® can work with your healthcare provider to help you navigate the reauthorization process.
myRARE ® text reminders Receive text messages to alert you about upcoming EVKEEZA treatments. To opt in for text reminders, call 1-877-EVKEEZA (1-877-385-3392) and select option 1.
The EVKEEZA Digital Companion is a free app provided in partnership with Redi.Health. Download the Redi.Health app to your phone. Then enter the code evkeeza1 when prompted.
“My experiences with myRARE ® and the specialty pharmacy have been great. They help with insurance issues, and when I needed a new home infusion nurse, they made things very easy for me.” — Chris, who has HoFH and has been on EVKEEZA since 2016 (as part of the EVKEEZA clinical study)
Earn milestone belts Milestone belts are awarded by doing tasks such as logging completed EVKEEZA infusions or confirming that you went to a previously scheduled appointment. You can progress from a white belt to a black belt over time by staying on your treatment routine, as appropriate and prescribed by your healthcare provider. The EVKEEZA Digital Companion features a range of tools, such as an LDL-C log, the EVKEEZA treatment tracker, resources and education, access to your support team, and more.
Not an actual patient.
Moving, changing jobs, or retiring from work? This may mean changes to your health insurance coverage, including covered options for where to receive your EVKEEZA infusions. With myRARE ® support, you and your healthcare provider can understand how to maintain coverage for EVKEEZA.
A desktop version is also available at app.redi.health Users must be 13 years of age or older to register for the EVKEEZA Digital Companion. The Redi.Health platform is intended for users over the age of 13, and Redi.Health does not knowingly collect personal information from children under the age of 13.
Missed an EVKEEZA infusion?
“Planning in advance is the key. I plan two months in a row. This way, if something happens, I have time to tell the nurse so we can reschedule.”
IMPORTANT SAFETY INFORMATION (continued) Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Please see additional Important Safety Information on following pages and click here for full Prescribing Information, including Patient Information.
— Carolina, who has HoFH and has been on EVKEEZA since 2018 (as part of the EVKEEZA clinical study)
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